Still Waiting

With increasing frequency I have been asked the question "When are you having the surgery?"  Originally I would reply with an optimistic "in a month or two hopefully," but now I am considering responding with "When Hell freezes over and the Gods tear the sky asunder."

My patience is starting to wear thin.  Looking back when I started this blog, it was over two years ago.  Two.  Fracking.  Years.  And I have only recently made progress so far because it was I who did the incessant phone calling, chasing up letters, appointments, and waiting lists.  It was I who decided to make the enquiry about changing hospitals to speed up the process - no one mentioned to me it might be quicker until I joined a rehab unit and one of the nurses casually mentioned it.  I only changed as a last resort - a big decision since I had been with my original hospital since I was 17, and was like stepping into the unknown.

It is the constant phoning that is testing my patience.  I have said before, both places probably think I am a crazy stalker patient, but if I wasn't so persistent, I would have never found out that I was never put on the waiting list for a Baclofen trial, that the letter mysteriously went walkies in the post.  Don't get me wrong, the NHS is a brilliant thing to have, considering the fortunes I would have to spend in a system like the US, but good grief do they make you work for it.

My family and now fiancé are frustrated too - my mum and fiancé have been to most of my consultations, trials, appointments, etc.  He has put up with moving around finding The Perfect Place suitable for when the pump finally happens, supporting me when I went part-time at Uni, thinking that This Would Be The Year.  Thinking about it, everything has been in preparation for it, including the acceptance of the changes it will bring.  But stretching out the waiting process is horrible, bearing in mind my phenol injections have worn off, I am on no kind of medication, and my increasing tetchiness must make me a pain to live with.

So, this week, again I will be ringing up just to get a hint of a date, as I am just not going to assume "things will happen."

Rant over, but it felt GOOD.  Now when I go home I will probably vent further anger shooting some Banshees in Mass Effect 3.