Lately it has been a case of waiting for one bus to arrive and then several arriving at once! Where do I start...well a good place would be the baclofen pump. Wondering what the heck was going on with my referal, I rang up the neurosurgeon's secretary to see where I was in the waiting list. To cut a long story (and several phone calls) short, my referal got mysteriously lost in the post and the secretary had no idea who I was.
...riiiight.
More phone calls and a day later she rings me to say that I am now on the waiting list but it is unlikely I will get seen by September.
I HAVE BEEN WAITING SINCE FEBRUARY.
So today I rang my baclofen assessment unit and explained the situation to them and they thought it was pretty ridiculous. While I was on the phone one of the baclofen therapy nurses told the person on the other end that they had something to discuss with me and could I come over as soon as a space was available?Turns out that space is tomorrow, so here I am at my parents the night before wondering what it could possibly be about.
In addition to this I have had visits from Occupational Health, Social Services (which confirmed what I knew, my bathroom is deeply un-cripple friendly), and physiotherapy appointments, plus my wheelchair quotation finally arriving AND that I can get funding to go to the Calvert Trust...phew!
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